Kidney Living -- KidneyLiving.com

Where Kidney Patients Connect

ALERTS!

APRIL IS NATIONAL DONATE LIFE MONTH & YOU CAN MAKE A DIFFERENCE!

Go to http://donatelife.net to register to become an organ donor today and make sure to tell your family & friends your wishes to be a organ donor.

Did You Know?

-- 1 person can save up to 8 lives by donating organs (heart, lungs, liver, kidneys, pancreas and intestines).

-- A tissue donor (corneas, bone, skin, heart valves, tendons, veins, etc.) can improve 12 or more lives by restoring eyesight, helping fight infections in burn patients and preventing the loss of mobility and disability.

>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

For the month of March, in honor of National Kidney Month & World Kidney Day, we are raising money for the DPC Education Center...a wonderful non-profit organization that is dedicated to improving kidney patients' quality of life and reducing the occurrence of ESRD through education and by developing awareness of dialysis and kidney issues, improving the partnership between patients and caregivers, and developing favorable public policy.

 

Click on the link below to go to our Fundraising Page & make a donation today. Any amount, big or small, is greatly appreciated. Thank you. Please spread thd word!

 

http://donate.dpcedcenter.org/goto/cepm

>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

Please WRITE & CALL your members of Congress to let them know you're outraged at Medicare's recent 9.4% cut to kidney patients.

 

**TO WRITE: http://tinyurl.com/qet4zj2

**TO CALL: http://www.capwiz.com/dpcitizens/callalert/index.tt?alertid=62762041 OR if you know your representatives, call the Capitol Switchboard (202-224-3121) & ask to be connected to your legislators

 

If finalized, this proposal could have devastating consequences on kidney patients’ access to quality care and services. Dialysis facility closures and staffing reductions would be inevitable because Medicare payments simply would not cover the cost of care. CMS is accepting comments on the proposed rule until August 30 -- it is vitally important that you reach out to your elected officials now, so that the voices of kidney patients can be heard!

>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

Please Sign the NKF Petition & Help Stop Proposed Cuts to Kidney Patients!

>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

"Center for Medicaid and Medicare Services (CMS): Withdraw the Proposed Cuts to Dialysis Centers and ESRD Patients":

https://www.change.org/petitions/center-for-medicaid-and-medicare-services-cms-withdraw-the-proposed-cuts-to-dialysis-centers-and-esrd-patients

>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

Alarms android app for NxStage home hemodialysis machine now available!

>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>

For those of you who do home hemodialysis using the NxStage machine, there is a NxStage machine & pureflow alarm app for android phones (not sure if it's available for apple also). It's called the "DailyHemo Alarms App". It's a handy tool to have.

Videos

  • Add Videos
  • View All

Photos

Loading…
  • Add Photos
  • View All

Kidney Organizations

>>Dialysis Patient Citizens (DPC): http://patientcitizens.org
>> DPC Education Center: http://dpcedcenter.og
>> National Kidney Foundation (NKF): http://kidney.org
>> American Association of Kidney Patients (AAKP): http://aakp.org
>> American Kidney Fund (AKF): http://kidneyfund.org
>> Renal Support Network: http://rsnhope.org
>> United Network for Organ Sharing (UNOS): http://unos.org
>> Organ Procurement and Transplantation Network (OPTN): htp//optn.org
>> DaVita: http://davita.com
>> Fresenius: http://fmcna.com
>> NxStage Medical: http://nxstage.com (1-866-NxStage)

Other Helpful Links
>> AAKP Healthline: a free, 1-hour conference call designed to educate people on a variety of topics affecting kidney patients and their families.

>> Yahoo Users Group - Home Dialyzors United (formerly NxStageUsers)

>> I Hate Dialysis (IHD) Forum

>> RSN's Kidney Space Forum

>> RenalWeb

>> Dialysis From the Sharp End of the Needle (Bill Peckham's DSEN)

Travel Plans

 Find a dialysis center

Searches DaVita centers:

>> DaVita Find a Dialysis Center

>> DialysisFinder

>> Dialysis Care Facility

 

Searches multiple dialysis center companies that offer home hemodialysis using the NxStage machine:

>>NxStage

 

Searches multiple dialysis center companies (including DaVita, Fresenius, and DCA):

>> Home Dialysis Central

>> The Nephron Information Center

>> DialysisCenters.org

>> Medicare Dialysis Facility Compare

 

 

Other helpful tips for traveling:

>> Dialysis machines are considered medical devices and you should not be charged anything to take them on a plane. It is always a good idea to bring along a letter from your doctor explaining your medical needs.

>> www.angelflight.com

 

WELCOME

Staying informed about your disease is key to making the treatment work. It's like I always say: “The only person with you (the patient) all the time, is you (the patient), so the more involved you are in your care, the better the outcome!”

 

If you have any questions or suggestions, please email info@kidneyliving.com. I hope you enjoy my site and come back often.

 

Note: The data and statistics on this website pertain to the United States unless otherwise noted.

KIDNEY BASICS

  • Most people have two kidneys.

  • Your kidneys are located on either side of your spine, just below your rib cage.

  • Each kidney is about the size of your fist.

  • Your kidneys are connected to your bladder by thin tubes called ureters.

 

What do your kidneys do?

  • Regulate the composition of your blood

    • Keep the concentrations of various ions and other important substances constant

    • Keep the volume of water in your body constant

    • Remove wastes from your body (urea, ammonia, drugs, toxic substances)

    • Keep the acid/base concentration of your blood constant

  • Help regulate your blood pressure

  • Stimulate the making of red blood cells

  • Maintain the amounts and interactions of nutrients from food, including minerals like calcium, phosphorus, and vitamin D

  • Play an important role in a child's growth

>> Here is a good article explaining what your kidneys normally do: http://health.howstuffworks.com/kidney.htm
 

 

Stages of Chronic Kidney Disease (*)

Stage

Description

GFR Level

Normal kidney function

Healthy kidneys

90 mL/min or more

Stage 1

Kidney damage with normal or high GFR

90 mL/min or more

Stage 2

Kidney damage and mild decrease in GFR

60 to 89 mL/min

Stage 3

Moderate decrease in GFR

30 to 59 mL/min

Stage 4

Severe decrease in GFR

15 to 29 mL/min

Stage 5 (also known as ESRD or End Stage Renal Disease)

Kidney failure

Less than 15 mL/min or on dialysis

  • In Stage 1 and Stage 2 CKD, there are often few symptoms. Early CKD is usually diagnosed when there is:

    • High blood pressure

    • Higher than normal levels of creatinine or urea in the blood

    • Blood or protein in the urine

    • Evidence of kidney damage in an MRI, CT scan, ultrasound, or contrast X-ray

    • A family history of polycystic kidney disease

  • In Stage 3 CKD, anemia (a shortage of red blood cells) and/or early bone disease may appear and should be treated to help you feel your best and reduce problems down the road.

  • When CKD has progressed to Stage 4, it's time to begin preparing for dialysis and/or a kidney transplant.

 

What is kidney failure and how is it treated?

Kidney failure means your kidneys have stopped working well enough to keep you alive. Harmful wastes and fluid begin to build up in your body, blood pressure may rise and your body cannot make enough red blood cells.

When this happens, you need treatment to replace the work of your failed kidneys. There is no cure for kidney failure. A person with kidney failure needs treatment to live. Three types of treatment can be used if your kidneys have failed: hemodialysis, peritoneal dialysis or kidney transplantation .

Your health care team will help you choose the best treatment for you based on your general health, lifestyle and treatment preference. Your decision does not need to be a final decision. Many people have used each one of these treatments at different times


What causes kidney failure?

The two main causes of chronic kidney disease are diabetes and high blood pressure (or hypertension).

> Other conditions that affect the kidneys are:

  • Glomerulonephritis, a group of diseases that cause inflammation and damage to the kidney's filtering units. These disorders are the third most common type of kidney disease.

  • Inherited diseases, such as polycystic kidney disease, which causes large cysts to form in the kidneys and damage the surrounding tissue.

  • Malformations that occur as a baby develops in its mother's womb. For example, a narrowing may occur that prevents normal outflow of urine and causes urine to flow back up to the kidney. This causes infections and may damage the kidneys.

  • Lupus and other diseases that affect the body's immune system.

  • Obstructions caused by problems like kidney stones, tumors or an enlarged prostate gland in men.

  • Repeated urinary infections


What are your options?

There are 3 options when your kidneys fail:

  1. Transplantation

  2. Hemodialysis

  3. Peritoneal Dialysis

Each modality has its pluses and minuses. To learn more about each option, click on the corresponding tab above.

**Note: I am still working on this information and so you will not see all of  these tabs yet, but please check back often because they are Coming Soon!


 

Kidney Disease in Children
http://kidshealth.org/parent/medical/kidney/kidney_diseases_childhood.html#

 

SOME STATISTICS

  • Nearly 1.3 million people worldwide require dialysis or a kidney transplant to live. (*)
  • It is estimated that more than 31 million American adults have chronic kidney disease (CKD). That means one adult out of every eight in the United States has decreased kidney function. (*)
  • More than 100,000 Americans are diagnosed with kidney failure or end stage renal disease each year (*)
  • Over 300,000 people in the United States live with End Stage Renal Disease (ESRD). (*)
  • Over 60,000 people are on the kidney transplant waiting list. (*)

 

Forum

Share your story?

Started by Christina Esposito in General. Last reply by Teri Gorbea Feb 14, 2011. 2 Replies

Would like to share your story? Tell us about your experience with kidney disease. Are you a patient or a caregiver or a family member? Are you familiar with dialysis and/or kidney transplantation?

Tips

Started by Christina Esposito in General. Last reply by Christina Esposito Feb 7, 2011. 1 Reply

Do you have any tips you would like to share?

Did you know that March 10th is World Kidney Day and that March is National Kidney Month in the USA?

Started by Christina Esposito in News Jan 17, 2011. 0 Replies

Here are some ways to show your support:Tell people about KidneyLiving.com -- spread the wordLearn how to stay healthy and better take care of your kidneysBecome an organ donor Designate your wishes…Continue

 
 
 

KidneyLiving.com is participating in this year's NKF NYC Kidney Walk!

Join our team and make a donation to help fight kidney disease. Just go to http://donate.kidney.org/goto/KidneyLiving and click on the red "DONATE" button on the upper right corner of the page. To join our team just click the red "JOIN MY TEAM" button

About

Click the "like" button on our facebook page to become a fan

Contact

If you have any questions or suggestions, please e-mail info@kidneyliving.com.

Donations

========================== Kidney Living is not a non-profit organization. I am just a kidney patient trying to get any info about kidney disease that I know, have experienced, and/or could find, all in one place to help anyone who is looking for information about the subject. I incur all costs involved in this process and in maintaining this site.

 

I would greatly appreciate that if you have found my site useful and would like to help support me in keeping it up and running, that you click the "Donate" button below. Thank you.

 

==========================

© 2014   Created by Christina Esposito.

Badges  |  Report an Issue  |  Terms of Service